All posts by Neil

Adapting…

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Noah got his new helmet today – one day early – so his physical therapist could fit it before she left town. He’s adapting well to it, and he doesn’t even really seem to notice it much anymore.  Amanda took him to Wrap Buddies today to get measurements done for his new helmet wrap on Friday!

Tired

It was a long day. Noah went to the doctor again this morning. He has another double ear infection. 🙁

So, he’s been battling that today, in addition to getting fitted for a new helmet. Poor guy!

Tonight, he fell asleep while eating…

A new helmet saga begins…

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Noah said goodbye to his old helmet today, as we gave it to Cranial Technologies.  Cranial Tech scanned Noah’s head for his new helmet which should arrive on or before February 22nd.  Their scanner is quite a bit different than Hanger’s scanner.  The Cranial Tech scanner uses 25+ cameras around and above him to composite a 3D image of his head.  It looked like the holodeck from the starship Enterprise!

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Instead of his cute “Amish” bonnet that he wore before, he wore a nylon sock over his head.  That didn’t go over really well, but he was a good sport about it.  After several tries with several toys, we finally got a good image.  So, now we wait.

Our new physical therapist, Amy, was very helpful in our decision to go forward with the second helmet.  She re-measured him for us and gave us a lot of good feedback for our decision.  In the end, we decided it was worth the time and effort (and money) for a second helmet.  Noah says he agrees.

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Cold

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Today, it is cold.  We awoke to having no electricity and no water.  The electricity is back on, but I guess the pipes are frozen.  🙁  So, we’re trying to stay inside and stay warm!

Poor little Noah is battling a cold once more, and his little nose is rosy (and runny).  He’s bundled up good and warm, and he is having a grand time with both of us home today.

Latest stats – 9 months

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Noah had his 9 month appointment with the pediatrician today.  His latest stats:

20.8 lbs

29 inches long

75% percentile on height

50% percentile on weight

462mm head circumference

That last figure made us decide it is time to remove his current helmet permanently.  He’s outgrown it at this point.  We’re still debating a new helmet for Noah, as we’ve had two doctors/therapists tell us it may not make sense to continue with treatment; for the cost, we may not see that much improvement.

Noah has an appointment on Tuesday with a new helmet provider, so we’ll hopefully have confirmation one way or the other by then.  Prayers would be appreciated for wisdom.  Last night, during his bath, was the first time in a long time that his head has looked very symmetrical to me; so, that was encouraging.